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Friday, December 1, 2023

Lupus Still Sucks...


We all know Lupus sucks but it's really sucks when you realize that I am back at my pre-pandemic health, which means I pick up EVERYTHING. During the pandemic, I found that I could be "healthy" if I didn't have contact with people. I didn't come down with any contagious bugs for 2 years. I did get sick with pancreatitis and a sinus infection from my allergies but that is expected,  sort of... but that's another story... 

Historically,  I am sick a lot, as most people with Lupus are but it is *always* worse in the fall/winter. I used to fight to stay healthy for as long as I could because I found that if I got sick before Halloween,  I wouldn't be healthy again until April. I can't pick up a bug too early in the fall season otherwise my immune system doesn't have it in it to fight off any of the tougher bugs that come around once winter is in full swing. If I can "hold out" and not get sick until after Thanksgiving. I generally will be healthier that winter season... However,  this year, I am sick and have been sick since Halloween.  🤧 

I will say it may be kinda my fault I got sick since I haven't been as careful and wearing a mask in public, like I planned... but I've been relatively healthy (for someone with Lupus,  Fibro and EBV) so I thought I'd be ok. I went out to see a play on Friday before Halloween, and then we saw Rocky Horror on Saturday that same weekend. We had a lot of fun but a few days later, we (me, angus and historyboy) all came down with stomach bugs, which they got over much quicker. Angus threw up once and was better 2 days later. HistoryBoy only had the intestinal end of it and again was better in 2 days...

For me, that stomach bug triggered pancreatitis. Two weeks later, I was feeling a little better. I hadn't been out since I had gotten sick so I went with Angus to take HistoryBoy to eye doc and then we grabbed Starbucks on the way home. I managed to pick up a URI (upper respiratory infection) in that short trip which I had for a week before the guys picked it up from *me* AND they were only sick for a few days. The URI for me triggered pluerisy. 

Realize, at this point,  I am not completely over the pancreatitis, I'm still on a modified diet and have to be careful of what I eat but I'm getting better. The pluerisy was awful. I haven't had it in about 10 years.  Now I have to try to differentiate between yhe pain in my side from pancreatitis and the pain from pluerisy, as my doc wants updates on how in feeling. Then, as I was getting better from all of this, I've got the stupid URI back. 😭 The guys having gotten over the URI fairly quickly, shared those stupid germs back with me, and I am down with it again, stuffy head, headache, post nasal drip, stuffy ears and ear pain. It will probably be another week before it is gone. #LupusSucks 

I will close by saying that winter is the worst with Lupus, for me. Sadly I was at my healthiest during the pandemic when I had no contact with anyone. I didn't pick up any bugs. It was wonderful to an extent. I have never known being healthy like that since I was 15... I will say what we all know #LupusSucks

Thanks for listening 

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