Someone asked me recently what is my normal? ... and in trying to figure it out, I realized that over 2/3 of my life at this point has been living with Lupus.
That isn't a complaint; it is just a statement of fact. I was 15 when I was diagnosed with Lupus. I'm 46 now. I don't really remember what it was like to not have Lupus, and that's not saying I don't remember my childhood. I do, but I don't remember the feeling of being healthy. I did well managing my lupus for a lot of years, I had more ups than downs until about 20 years ago. And while I wouldn't trade my son for anything, I've never been as healthy since as I was before I had him. I sort of think of it as the sands of an hourglass. You don't notice the loss of a few grains of sand over a short period of time, but the cumulative effect when I look back is very noticeable.
I'm not sure what my normal is anymore. If I figure it out, I'll let you know.
PS: This is my first post on about 5 years. I'm sorry for disappearing but life... and my health has been very up and down so the blog slipped into the background. I will be posting more often going forward, hopefully.
