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This and every Memorial Day, I remember my Grandpop. He served in WWII. He was injured and sat in a hospital in Germany for a long time, not knowing if he would survive. He lost a lot friends, both from home and ones he made abroad. We honor those that serve in our Armed Forces. It is because of YOU that we can live safely in our homes. Thank You and God Bless YOU!
I usually take it easy. Very easy. I know I can't do things two days in a row. But I said I'll push myself a little. Now Day 3, I am barely out of bed. I think I need to boil my body in a HOT HOT bath and hope it helps. Meds didn't seem to help again much today.
I overdid it this weekend and I feel rotten but I wanted to see be able to do things like a "normal" person. Go to a movie on Friday, hang out with friends on Saturday and go to a play on Sunday. My body is crying now and I know I should have NOT gone to the movie but my hubby and son really wanted to go and I gave in. Now it will take me this whole week to recoup and I know it. I need to find a way to enjoy life and not fall apart.
This all started because HistoryBoy had asked to go to the movies, I said I wasn't sure, I would have to see how I was feeling.. He says to me "I wish you were healthier so we could do more fun things." He wasn't trying to be mean, to him it was a logical, Asperger answer. Truthful and logical and just wanting to spend "fun" time with his mom. So I sent my son off to school and called my hubby at work and told him I was going to rest all day so we could go to the movies Friday night. When I already knew I had plans for Sat night and Sun Afternoon. But it was a fun weekend. I just wish my body handled them better.
If I haven’t mentioned before, HistoryBoy’s best friend is HyperGirl. They are peas in a pod. Forest Gump would say that are just like Peas and Carrots. They have been friends since we moved here about 7 years ago. At 3 years old, kids don’t care about whether you are a boy or a girl, at least HistoryBoy didn’t. He only cared that she liked Thomas trains. So a beautiful friendship began.
HistoryBoy describes HyperGirl as the female version of himself. And what is great about their friendship is that they give each other the space they need. HyperGirl says to me, HistoryBoy is having a meltdown, I’m going home. Or HistoryBoy comes home from her house saying HyperGirl is being too HyperGirly. They know each other’s limitation and quirks and don’t judge. It’s great. And when they have cooled off, they are off playing again, maybe later that same day or the next day.
HistoryBoy and HyperGirl are together most days after school, playing outside on nice days or rainy days indoors on the Wii. They are protective of each other. No one messes with one of them if the other is there. So they both feel safe
We have been lucky that HistoryBoy found such a good friend. It is very hard for HistoryBoy to be comfortable around kids his own age, and make friends. We are working on his social skills, but I think HyperGirl is a HUGE part of the development of those skills because he isn’t afraid to interact with her and tell her “No I don’t want to do that,” or “I want to play this.” I don’t think HistoryBoy’s social skills would be as good without her. If you aren’t as lucky as me to have a HyperGirl, look for a support group, at least one parent should have a child your age or close to it, and hopefully will be able to interact successfully with your child.
Please feel free to leave a comment or email me at teenahope@gmail.com
This is a blog about me. I have talked a lot about HistoryBoy. But I needed a little me time here, it is my blog after all, LOL. HistoryBoy is my sunshine, truly. He is the reason I get out of bed in the morning, even on days when I feel like I can’t, because I am too sore, or too tired or both. For those of you that don’t know, I have Lupus, it was diagnosed at 15, which was 20 years ago, so I cope fairly well (I think) with it, but I also get horrible migraines and I was diagnosed with Fibromyalgia on top of the Lupus, so I am not coping as well lately.
I have had a couple of bad days (weeks… months), and they all blend together. I mark my calendar by doctor appointments. Tweak this med, add this. Does this help? It is the roller coaster of my life. Or it is how it feels sometimes. I am NOT asking for sympathy. All I am asking for I want energy. I want to bottle HistoryBoy’s energy and shoot an IV full of it into myself for even a day just to feel like myself again, even a little of my old self. I miss working and being able to do things that others take for granted.
I am on new meds right now which are helping but still not quite working and having some side effects, although not as bad as some other meds I have taken in the past. I just hate the let’s hope this works game. I always have to play do the benefits outweigh the side effects and lately the answers to those questions has been NO.
A friend of mine asked me, with all of my problems, what keeps me sane each day? What have I found that keeps me going? I told her my son keeps me going and my mom. My mom checks up on me every day and makes sure I am still kickin' whether I am having a good day or a bad day. Also, NOT focusing on what I can't do and thinking of what I can and will do. Guess I have to listen to my own advice and start figuring out what I CAN do and not worry so much about what I can’t.
I CAN finish this blog and then I CAN take a nap. Ahh I feel better already!
Please feel free to leave a comment or email me at teenahope@gmail.com